We have a wealth of data and biosamples available through the SCAMP study, offering opportunities for new research. Explore our Data Dictionary to see the variables collected, then read below for information on data access, governance, authorship and the application process.
SCAMP Data Dictionary
The SCAMP Data Dictionary provides an overview of the variables collected as part of the study, helping researchers explore the available data and identify opportunities for future research.
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Accessing SCAMP Data and Biosamples
Researchers interested in accessing SCAMP data or biosamples should review the following requirements before submitting a proposal.
Governance and approval:
All applications are reviewed by the SCAMP Study Access Committee, comprising study investigators, independent academic advisors and a lay member representing study participants. Applications are assessed on scientific merit, feasibility, ethical and regulatory approval, consistency with participant consent, funding, potential benefit to the wider research community, participant data security, and whether the proposed work could compromise SCAMP’s primary research or long-term value.
All data and biosamples are provided in anonymised form. As biosamples are a finite resource, applicants must demonstrate the added value of their proposed analyses and return any unused material to SCAMP.
Data availability and sharing:
New data and biosamples become available to the wider research community 12 months after completion of each collection phase, allowing time for data cleaning, biosample curation and primary research outputs. Some data may be subject to third-party sharing restrictions; for example, health outcomes from NHS Digital or education data from the National Pupil Database may require additional approval from the supplying organisation.
External researchers must return any new data or materials generated through their work to SCAMP within nine months. External researchers have the same access rights as those working directly with the cohort, subject to the governance arrangements outlined above.
User responsibilities:
Internal users must sign a Confidentiality Agreement. External users must comply with their institution’s Information Governance policy, and their institution must sign a Data Sharing Agreement (DSA) and/or Data Transfer Agreement (DTA). Additional ethical approval may also be required. All publications and other outputs arising from the use of SCAMP data or biosamples must be reported to the study.
Authorship:
The SCAMP Principal Investigator (PI) and any SCAMP team members who have made substantial contributions to the dataset or analysis used must be included as co-authors on resulting publications.
Data access charges:
Researchers are responsible for the costs of accessing and providing data or biosamples. Charges are calculated on a cost-recovery basis and depend on the resources requested. An accurate costing will be provided once a proposal has been agreed in principle.
Application process:
Expressions of interest should be sent to scamp@imperial.ac.uk, marked for the attention of Professor Mireille Toledano (SCAMP PI).
Applications should include:
- Lead and co-applicant details (title, name, affiliation and email).
- Project title and a description of no more than two sides of A4, including up to 10 key references.
- Background and research questions.
- Proposed methods, including the data and/or biosamples required.
- Planned outputs and project completion timescales.
- Evidence of relevant previous experience or a CV.